Living with any disability automatically adds brings with it many challenges and obstacles to overcome. It also brings unexpected happy surprises. One thing families in this situation do know is that mo two days are the same. Routine is something to be hoped for but rarely achieved.
There are days when everything seems to have been totally out of control, when perhaps a quick trip to the local shopping centre turned into World War 3 somewhere along the way and the short trip turned into a long afternoon. Sometimes the planned trip doesn't even get started.
For parents in this situation freedom to live a normal life seems like a pipe dream. Consider the children though. So often they do not want to act this way but seem to have no control over their emotions or actions. Where do you turn for help and advice?
There aremany groups in various countries and each state of Australia which certainly help in this area. It is often reassuring to know that others have been there and done that. It is also often empowering to learn how other families have coped in similar situations.
I am happy to say that here at Grandmas Toy Shop we have come across a great tool. "Rules of the Game" is a great set of downloadable books which actually do give good advice. Written by a mother with a child who has this challenge in his life, she is also qualified to write from an educated perspective. These books are written in a way which makes it much easier to understand what is in the mind of the child. Armed with that information it is so much easier for the parent to introduce strategies both to avoid potential disaster before it starts (at least some of the time) and also to help the child understand and manage his own behaviour.
I am impressed with what I have read of these books and would be very interested in your opinions should you buy them. Let me know here or by email on the "contact us" page. As usual the money back guarantee applies.
Posted by Administrator on February 12, 2010 at 4:20 PM under
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